From Chris Murphy 01634 686 515
She is known as the human pogo stick after doctors cut her in half to battle the cancer that was ravaging her body.
Janis Ollson is now battling to lead a normal life using an artificial body mould fitted with a leg to go with her one remaining good leg.
She is the first person surgeons cut in half, removed much of a cancerous midsection, then put back together with a happy ending.
Janis lives with her family in Balmoral, Manitoba, Canada.
She was even at her daughter’s school to talk to students about how to raise funds for cancer research its things like that which are keeping her alive, she said.
Three years ago, the 31-year-old was pregnant with her second child and had been suffering years of horrible back pain when Canadian doctors diagnosed her with bone cancer, chondrosarcoma.
Sarcoma experts in Toronto said they’d literally have to cut her in half to get at the untreatable cancer, remove her leg, lower spine and half her pelvis.
The problem was they didn’t know how to put her back together again at the time.
They certainly didn’t know how she would have a decent quality of life. They consulted with the Mayo Clinic and the Rochester, Minnesota, doctors decided to try something new.
Ollson became the first person to receive what is called a pogo stick rebuild, with her one good leg fused to her body with the reshaped bone from the amputated leg.
Three years later, she is alive and kicking even going snowmobiling and grocery shopping with her husband and two kids.
She said: Where we live, we use ATVs and snowmobiles. I use my ATV to take my daughter to school. There really isn’t a whole lot that stops me,” she told her local paper.
“I don’t like to be left out.”
Now she is cancer-free, although she lives with the knowledge it could return at any time.
She uses a prosthetic pelvis and leg, wheelchair, crutches or walker, depending on what she’s doing and where she’s going.
“I have no problem getting around. If I need to, I’ll crawl up stairs or scooch like a kid,” she said.
“I don’t want people to think ‘we can’t invite the Ollsons because they can’t get in here with a wheelchair.’ ”
“I want to live life to its fullest.”
In 2007, her life nearly ended.
“I had pain in my lower back with the first pregnancy. I just thought it was the pregnancy, as did my doctors.” She had to stop working when she was eight months pregnant because of the pain.
“After my daughter was born, I still struggled, but it seemed to get better.
“A few years later, I got pregnant with my son. The pain started to increase. I was waddling and hurting by three months.”
At five months, the pain was so intense she couldn’t work at her office job.
The non-smoker, who wouldn’t take any medications or even dye her hair during her first pregnancy, was at the maximum dose of strong painkillers during that agonizing second pregnancy.
“Nothing was working,” she said.
At seven months, the pain was so bad she couldn’t drive. Her suffering was so severe, she asked her doctor if her baby could be delivered prematurely.
“That wasn’t a rational thought for me,” she said. “By that point, I was quite desperate for some type of relief.”
She was told there was nothing more they could do.
“I went back home feeling very alone and misunderstood. I didn’t think people believed me. I knew it was a whole lot worse than anyone thought.”
She tried a machine that uses electrical pulses to deal with the pain, as well as hot packs and cold packs. She tried sleeping sitting in her kitchen with her head on the table. “Sitting was better than lying.”
In February 2007, the pain kept her awake all night. The next morning, she had to crawl across the kitchen floor to get daughter Braxtyn a drink.
Ollson realized she’d hit her breaking point: “I can’t take another day, another minute. I’m done.”
Her husband took her to hospital in Winnipeg and she refused to leave until she was admitted. A specialist and residents saw her and concluded she had pregnancy sciatica — caused by pressure on the sciatic nerve. They prescribed morphine to dull the pain enough for her to sleep.
No one suspected she had a form of bone cancer that rarely affects young women — until she awoke and talked to a neurologist, mentioning in passing she could no longer stand on her tip toes on her left side.
“It was a huge red flag” for the specialist, she said.
Immediately, she had an MRI and although she was told the results would take a few days, a doctor was in her hospital room to talk about the results the same day. She and her husband were told there was “something” on her lower spine, but no one could say if it was cancer.
Then came an excruciating two-day wait.
Finally, her obstetrician delivered the news: It was probably sarcoma.
But no one could be sure of that without a needle biopsy, which couldn’t be done while she was pregnant.
Two weeks later, after her healthy son, Leiland, was delivered by C-section 21 February 2007, the needle biopsy was performed. But that was inconclusive, even with sarcoma specialists in Toronto and at the Mayo Clinic weighing in. It was only after she travelled to Toronto for a biopsy that it was confirmed: a chondrosarcoma, the size of a Pizza one of the largest the experts had ever seen.
Chemotherapy and radiation couldn’t help. The cancer had spread through several bones, her pelvis, lower spine and into a lot of muscle tissue. Her only chance for survival was to remove it.
But removal, specialists said, might not be the best option. The Toronto specialist said he could remove the tumour but didn’t know if she could be put back together. Without a lower spine, half her pelvis and a leg, there was nothing to attach her remaining healthy leg to.
“I was in complete shock. I felt like I was going to throw up,” she said.
A young man with a similar sarcoma decided not to have it removed so he could live like a normal person until it killed him, the doctor told her.
“Once you have kids, that’s not an option,” Ollson said.
The Toronto doctor said he’d consult with Mayo Clinic experts.
“He said, ‘We’ll see if we can come up with a plan so you can see your children grow.’ ”
Back home in Manitoba, her relatives were devastated. Ollson focused on her new baby and family, waiting to learn if she could be “salvaged” and worrying the deadly sarcoma was growing.
Then she got a life-saving phone call. Mayo Clinic doctors asked her to come to the clinic in Rochester, Minnesota, for the experimental surgery, which had only been tried on cadavers.
“The plan was to remove the tumour, splitting my pelvis in half and removing the left half and left leg and lower spine,” she recalled.
Basically, the doctors would cut her in half, remove her midsection and put her back together using the bone from the amputated leg.
Ollson was thrilled.
“Somebody had a plan. It wasn’t hopeless.”
Family and friends held a social and raised $20,000 to cover the family’s travel and living expenses for the 52 days she spent at the Mayo Clinic. The surgeries were a success.
After much rehabilitation, she put her mobility to the test this May, walking down the aisle of their church on husband Daryl’s arm, on her way to the altar to renew their vows on their 10th anniversary. She used just a cane and a prosthetic leg with a microprocessor. She says she’s leaned on Daryl, her high school sweetheart, throughout the ordeal.
“He’s the glue. It’s been a lot for him to endure.”
Ollson says she’s never dwelled on “why me?”
“We don’t know when it started… It’s not known why anybody gets it. There’s no cause for it, no genetic link,” said the woman with no cancer in her immediate family.
“There’s some purpose to all this whether I know it or not,” she said.
From Chris Murphy 01634 686 515